Request the support of your local officials or state representatives for Celiac Disease Awareness events. A sample letter follows. Send these letters to coincide with other local or national awareness publicity.
The idea of an official proclamation is not a new one, but very popular. Many local chapters and individual members can use this sample for their own community, county, parish or designated area.
Any Celiac Disease Awareness national resolutions and proclamations will be handled by the national office. All proposed state and local resolutions or proclamations should be coordinated with the national office, to avoid duplication, and to make sure that everyone is included in the promotion process.
Please send any photos or news publicity using a proclamation to the CSA home office for use on the website as well as in Lifeline. Contact CSA by mail at:413 Ash Street, Seward, NE 68434 or by e-mail at [email protected]
Special Chapter Events National Events: May or October Celiac Awareness Month; National Celiac Awareness Day, September 13
Sample Letter to State Representative
The Honorable ________________ Office Building City, State, Zip
Senator / Representative / Mayor / Mr. / Mrs. / Ms. ______________:
As one of your constituents, I would like to bring to your attention to the ____________ Celiac Disease Awareness Event. I am calling for measures to promote the earlier diagnosis of celiac disease.
As you are probably aware, celiac disease is an autoimmune disease caused by the reaction to gluten, the protein fractions found in wheat, barley, rye and common oats. It is one of the most common lifelong disorders in the USA. There is no cure; the only reliable lifelong treatment is a strict lifestyle free of wheat, barley, rye and oats. Celiac disease affects as many as 1 in 141 Americans, but nearly five out of six people are undiagnosed. In fact, an average of three individuals is born every minute with a genetic predisposition to celiac disease.
Celiac disease has a myriad of symptoms which can vary greatly; as a result the disease often goes unrecognized for years. Left untreated, celiac disease may lead to chronic ill health and susceptibility to complications such as osteoporo- sis, infertility, other auto-immune diseases and an increased risk of malignancy, particularly lymphoma. Healthcare costs per untreated celiac in the United States range from $5,000-$12,000 annually, and total healthcare costs for all untreated celiacs in the United States can approach $34 billion each year, according to a recent survey.
(If applicable: The Celiac Support Association (CSA) is currently coordinating an Awareness Month under the campaign banner “2.5 Born Every Minute” to draw attention to the need for early diagnosis.)
I hope that you will add your name to this Celiac Disease Awareness proclamation to help raise awareness of this wide- spread but still largely unknown disease.
Chapter Contact Information CC: Celiac Support Association (CSA) Toll Free: 877-CSA-4-CSA www.csaceliacs.org
Whereas, celiac disease, also known as celiac sprue, is an autoimmune disorder that affects as many as one in every 141 Americans;
Whereas, every minute approximately three children are born with a genetic predisposition for celiac disease;
Whereas, Celiac Disease is triggered by exposure to wheat, rye, barley, and oats, and their crosses and derivatives, damaging the lining of the small intestine and preventing the proper absorption of nutrients into the body;
Whereas, some of the symptoms of celiac disease include fatigue, anemia, headache, and gastrointestinal distress;
Whereas, the disease was first described in the second century but the cause and treatment were not described in medical records until the twentieth century;
Whereas, celiac disease involves a wide spectrum of physical, neurological, and immunological conditions;
Whereas, the mysterious and mimicking nature of celiac disease makes it a diagnostic puzzle;
Whereas, the Celiac Support Association is the largest member-based non-profit organization helping the celiac community in North America;
Whereas, _________ is a Chapter of the Celiac Support Association, with their national headquarters in Omaha, Nebraska, and with all its affiliates have made tremendous strides in raising public awareness of celiac disease; and;
Whereas, The Celiac Support Association has developed education programs to establish greater aweareness of celiac disease and the importance of early diagnosis, and;
Therefore, I, __________________________________________________, do hereby proclaim
__________, as “Celiac Disease Awareness ____” In Witness Whereof, I have hereunto set my hand and caused the Great Seal of _________________
to be affixed.
Done at _________________ in the _________________________________ this _____ day of ________________ in the Year of Our Lord two thousand ________.