Celiac Support Association

Library Series Learning Center

This series is a collection of articles that pertain to celiac disease and gluten related conditions. Most of these articles have appeared in CSA’s quarterly newsletter, Lifeline, which all CSA members receive. Historic articles included in these resources may or may not include updated notes. Articles represent the work of the author.

The * symbol denotes a newly added section to the library series.

Tax Deduction with Celiac Disease

  • Tax Deductions
    - Which things can Celiacs count as tax deductible? Find out here!
  • A Practical Approach to Taking the “Gluten-Free Tax Deduction”
    - The first step in taking the deduction is to determine your eligibility to take it. To be eligible, you must have a documented reason to require the observance of a gluten-free diet. Generally, the best documentation is...  Featured in Lifeline  Issue 2014 Volume XXXIV No. 2:

Gluten-Free Definition - Food and Drug Administration (FDA) 

What is the relationship between 20 parts per million (ppm) and 10 mg gluten per day? 20 ppm gluten (equivalent to 20 mg gluten in 1 kg [1 million  mg] food) is the gluten threshold below which food manufacturers must achieve for foods to be labelled ‘gluten free’ in Europe, Canada and from August 2014, USA. If a person eats 500 g of food per day, 20 ppm of 500 g is 10 mg. 10 mg is present in 1/250th of a slice of bread containing 2.5 g of gluten.  Read more from Dr. Forbes.

"Gluten-Free You!" Monthlies                                        

"Gluten-Free You!" A new issue each month.  *December Monthly 2016    

"Gluten-Free You!" Monthly - 2016 issues

"Gluten-Free You!" Monthly - 2015 issues

"Gluten-Free You!" Monthly - 2014 issues

"Gluten-Free You!" Monthly - 2013 issues

Celiac Disease and Gluten Related Disorders

  • Reviewing medical literature: a primer for those living with Celiac disease  2014 A Must Read

    The safety, toxicity or otherwise of gluten…
    View as a presentation

    Author: Dr Geoff Forbes (MBBS, MD, FRACP) is a Gastroenterologist at Royal Perth Hospital, Perth, Australia; and Clinical Professor with the University of Western Australia. He is a clinician with expertise in immune conditions of the gut and in clinical nutrition. He is a teacher and researcher, and as he has family members with Celiac disease, he has a first hand knowledge of living with the gluten-free diet.

    The author has no conflicts of interest

Interpreting medical literature is difficult, time consuming, and easy to get wrong, even for the most knowledgeable. However, when someone has a life-long, but readily treatable condition such as Celiac disease, being informed is important. And before I receive objections to this statement, you will notice I said readily treatable, not easily treatable! Understanding empowers the individual, makes living with a GF diet easier, and is likely to result in improved health. I would not like to think that my missive will lead to CD patients turning to the medical literature in droves, but I hope that it provides some basis from which to be more enquiring of published data and reports.

  • *Celiac Disease Symptoms Fact Sheet - NEW
    - A comprehensive list of celiac disease symptoms. 4 page fact sheet
  • CD: The Great Mimic - 2000
    -Celiac disease (CD) is one of the great mimics in gastroenterology in particular and medicine in general. About 10 percent are incorrectly diagnosed for some length of time, in some cases years.
  • Hows and Whys - 1999 - Historical Article
    From the basics to the diagnosis, all celiacs that have been diagnosed or not should read this article.
  • Neurological Complications -  1998 - Historical Article
    -Neurological complications can exhibit features including peripheral neuropathy, myelopathy, optic myopathy, epilepsy and dementia. Malabsorption of vitamins has been implicated and reaction to toxic or antigenic material because of increased mucosal permeability has been speculated in celiac disease.
  • Dermatitis Herpetiformis and Dietary Gluten - 2004
    - Dermatitis herpetiformis (DH) is an intensely pruritic, chronic blistering disease that often appears quite suddenly, mainly between the ages of 20 and 55, and is much more common in men than women. Overall prevalence—more frequent than the bullous pemphigoid group of blistering diseases—is estimated at somewhere between 10 to 39 cases/100,000 annually.

For Those Recently Diagnosed =

Launching a Gluten-Free Lifestyle - 2014 
By the CSA; This guide walks you through the first week after being diagnosed, giving you ideas on how you can adjust more quickly to the gluten-free lifestyle

Celiac Disease Associated Disorders

  • Alzheimer’s Disease David N. Wolfgang - 2010
    - Celiac disease and Alzheimer’s, among others, involve early-life exposures to environmental agents. They also involve immune-inflammatory insult or dysfunction that is evident.
  • Hypothyroid - 1998 - Historical Article
    -Hypothyroidism is most commonly due to an autoimmune mechanism. Typically referred to as Hashimoto's disease, it is associated with circulating thyroid and parietal cell antibodies as well as autoantibodies to other organs of the endocrine system [which includes thyroid]. The autoantibodies are particularly common in insulin-dependent diabetics.
  • Osteoporosis - 1996 - Historical Article
    -Osteoporosis commonly means bones that have thinned from the inside due to mineral loss and have now become vulnerable to fracture. The bad news: celiacs need to see osteoporosis as a common disorder which may accompany the malabsorption syndrome. The good news, however, is that there are now several medications which can greatly assist in giving bones a boost.
  • Psoriasis - 1998 Historical Article
    -Psoriasis is a persistent skin disease that takes its name from the Greek word for "itch." In some cases, psoriasis is so mild that people don't even know that they have it. At the opposite extreme, severe psoriasis may cover large areas of the body and harbor a pustular form.
  • Why Thyroid - 1998 Historical Article
    -Thyroid disease and abnormal thyroid tests are more common in people with sprue than in the general population. At the same time celiac disease is more common in individuals who have thyroid disease. This association appears to be based on the tendency for people with autoimmune diseases to be predisposed to other autoimmune diseases. 

    *Vocabulary Evolution of Celiac Disease
  •  A Multidiscliplinary task force of 16 physicians from seven countries reviewed and evaluated current terminology during a meeting in Oslo, Norway. These definitions are the results.
  •  Abbreviations for digestive situations described at ICDS 
                                     -PWAWG             Patients Who Avoid Wheat and/or Gluten (in the Absence of Celiac
    Disease) coined by Peter Green, MD:
                                     -SIBO               Small Intestine Bacterial Overgrowth

                                     -FODMAP         Fermentable Oligosaccharides Disaccharides Monsaccharides Polyols
  • CD and CeD are abbreviations for Celiac disease or Coeliac outside of the US.
  • Social and Family Issues
  • Helping Our Family & Friends Understand - 2013
    I want you to know – I will be okay! BUT I need your support and understanding. I have “celiac disease” and I have to..
  • Communion - 2003
    - In seeking an opportunity for full open communion, many Protestant churches seek a positive way to serve parishioners who cannot eat wheat. Communion Bread formulated without wheat and gluten is suitable for the entire congregation. The Host used for commuinion in the Catholic church is defined by Canon Law as unleaved bread from wheat and water. Options available to Catholics include, wine alone or low gluten Hosts. The low gluten Hosts generally have less than 20 ppm of gluten.   
  • Coping - 1993 - Historical Article
    -One of the most supported forms of coping is the importance of sharing feelings in support groups. The insecurities, frustrations and adjustments related to the gluten-free diet and the illness should be aired with those who understand our situation. Such meetings can contribute greatly to easing denial, isolation and potential anger
  • Then and Now - 1998 - Historical Article
    -The challenge of living with celiac disease is not trivial. A lot of people say, "Well, what's the big deal. You just get on the gluten-free diet, and you are cured." But eating gluten-free is not simple, so that is the challenge. The good news, of course, is that the complications of celiac disease can be avoided by careful adherence to a self-managed gluten-free diet.


Labeling Food and Drugs

  • Definition of Food Labeling - 1993 - Histocial Article
    -Before passage of the 1990 Nutrition Labeling and Education Act (NLEA), the former Food, Drug, and Cosmetic Act did not require flavorings, colorings or spices to be identified by their common or usual names. Instead, they could be declared collectively as…
  • Label Reading 101 
    -Label reading is an essential skill in following a gluten-free diet. When reading labels, search for ingredients containing Wheat, Barley, Rye and Oats (WBRO) or their crosses or derivatives. Your best defense for risk-free choices is. . .
  • Label Names - 1993 - Historical Article
    - The additives commonly found in ice cream and frozen alternatives have some strange names. The list below includes some of the most common. While some are considered natural, they may be processed with chemicals. Check out the list here!
  • Label Changes  - 1993 - Historical Article
    - A packager's life can be tough. You watch the regulatory scene, and you think you know what's going on. Then one day things get so complicated that you wonder if you have even a clue. For example, food labeling.
  • Medications  CSA Gluten in Medications Position Statement -
    -CSA supports eliminating ALL ingredients derived from gluten sources, from ALL forms of human medications.
  • 2011 CSA Submission to FDA Docket on Gluten-Free Labeling - 2011
    - The Celiac Support Association (CSA) supports a definition for voluntary use of the term gluten-free validated substantially lower than the proposed 20 parts per million (ppm). A lower compliance safety standard would be suitable for more celiacs, according to FDA’s own reports. The current preference of the membership is a gluten detection assay sensitive to 5 ppm. This definition would make certification programs, including the CSA Recognition Seal, unnecessary.
  • Food Drugs and Cosmetics Additives - 1992 - Historical Article
    -Color additives for use in foods, drugs, and cosmetics are regulated by the Food and Drug Administration (FDA) under its authority derived from the 1960 Color Additive Amendments to the Federal Food, Drug, and Cosmetic Act (FFDCA). The amendments shifted the burden to industry to prove that the FD&C color additives are safe
  • *Labeling and Advertising of Wines, Distilled Spirits, and Malt Beverages - 2012
    - The Alcohol and Tobacco Tax and Trade Bureau (TTB) May 24, 2012 ruling reiterates the pre Food Allergen Act of 2004 and the gluten-free proposed labeling -- working definition of gluten-free based upon FDA compliance guidelines on the use of the term “free” under misbranding penalties. Thus until a US definition for gluten-free in labeling exists or is set by the FDA, the former (and current) use of “free” is affirmed as the regulation. Click here to view the press release  and complete ruling.
  • Proposed Gluten-free Labeling for Hydrolized, Fermented and Distilled Foods   Comments open until April 25, 2016
  • Guidance for Industry
    -
    Contract Manufacturing Arrangements for Drugs
  • Guidance for Industry
    -
    Quality Risk Management
  • Guidance for Industry
    -
    Pharmaceutical Quality System
  • The IPEC Quality Agreement Guide and Template - 2009
    - IPEC is an international industry association formed in 1991 by manufacturers and end-users of excipients. It is an association comprising four regional and country pharmaceutical excipient industry associations covering the United States, Europe, China and Japan 

National Institutes of Health

       NIH 5 Year  Organizational Framework   5 Year Strategic Plan

Celiac Disease and Your Diet

Which vitamins and nutrients are crucial for a healthy diet while remaining gluten-free?
Did you know?    About the grains?
Helpful tips and truths that each Celiac should keep in mind while maintaining a gluten free lifestyle.
Gluten-Free Forever   Youth Ambassadors 

Meetings 

2016 Power Point Presentations  
Four Corners Family Night

2015 Great III Presentations in  PDF
2014
 

2013

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