Celiac Support Association

Government and Educational Links 

Food and Drug Page

  1) Lookup - Ingredients in medications
National Institutes of Health consumer information on diseases and conditions
Academy of Nutrition and Dietetics   2) Academy of Nutrition and Dietetics  Locate a dietitian.
Food and Drug Administration     3) As a regulatory agency, FDA publishes rules that establish or modify the way it regulates foods, drugs, biologics, cosmetics, radiation-emitting electronic products, and medical devices--commodities close to the daily lives of all Americans. FDA rules have considerable impact on the nation's health, industries and economy. These rules are not created arbitrarily or in a vacuum. They are formed with the public's help

4) www.usda.gov USDA's Newsroom

is the official website of the United States Department of Agriculture.

 USDA National Nutrient Database for Standard Reference of food ingredients
                            National Nutrient Database for Standard Reference

Glycemic Index list is an International GI database maintained by the University of Sydney, Australia  which is based in the Human Nutrition Unit, School of Molecular Bioscience, University of Sydney. The website is updated and maintained by the University's GI Group which includes research scientists and dietitians working in the area of glycemic index, health and nutrition including research into diet and weight loss, diabetes, cardiovascular disease and PCOS and headed by Professor Jennie Brand-Miller. 


5) Search the USDA National Nutrient Database by food product, such as dinner roll -or-

Search the USDA National Nutrient Database by single nutrients, such as calcium or niacin

Read more on Carbohydrates Dietary Carbohydrates: Sugars and Starches Chapter 6 Dietary Reference Intakes(link is external)

National Academy of Sciences. Institute of Medicine. Food and Nutrition Board.

Celiac Centers  

Locate a Celiac Center near you. If there is no center near you contact your closest state medical college gastroenterology division.

How many people in my city or state have celiac disease? 

US Census Information: Figure 30-40% of the population has inherited the genes identified with celiac disease.  1 % of the population has active celiac disease. 23-30% have been diagnosed. Upto 6% have non-celiac gluten-sensititivity.  Census Quick Facts

FDA Searchable References and Databases

FDA Consumer Protection and Information   Newsroom 


Health Links

HHSThe Department of Health and Human Services (HHS)

Search for a local drug disposal site   Awarxe get informed

    1) The Department of Health and Human Services (HHS) is the United States government's principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves.

National Institutes of Health (NIH) - Turning Discovery into Health


2) The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.

Helping to lead the way toward important medical discoveries that improve people's health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.



3) Conducts and supports basic and clinical research on many of the most serious diseases affecting public health.

Until May 19, 1972, the National Institute of Arthritis and Metabolic Diseases; until June 23, 1981, the National Institute of Arthritis, Metabolism, and Digestive Diseases; and until April 8, 1986, the National Institute of Arthritis, Diabetes, and Digestive and Kidney Diseases.

  • National Commission on Digestive Diseases

Opportunities and Challenges in Digestive Diseases Research:

Digestive Diseases Research

Public Comments were open from February 8–March 8, 2008

Comments submitted by CSA

PDF version of draft research plan: (PDF-4MB)

508 compliant HTML version of draft research plan: (HTML)

Celiac Disease Awaremess Campaign  

4) 2004 Consensus Development Conference on Celiac Disease

In 2004, Celiac Support Association (CSA) collaborated with the NIH to launch this campaign to heighten awareness of celiac disease among health care professionals and the public.

The campaign website (www.celiac.nih.gov) provides access to:

  • educational materials and services
  • current NIH research about celiac disease
  • additional campaign information and resources, including an e-newsletter

5) The Center for Disease Control and Prevention is one of the major operating components of the Department of Health and Human Services. CDC′s Mission is "To promote health and quality of life by preventing and controlling disease, injury, and disability". CDC′s Vision for the 21st Century is "Healthy People in a Healthy World—Through Prevention".

  • The Centers for Disease Control (CDC) is encouraging screening for colorectal cancer, endorsed by Katie Couric and Morgan Freeman, in their Screen for Life campaign.
  • Tracking Family Health History
  • It is helpful to talk with family members about your health history, write this information down, and update it from time-to-time. The Centers for Disease Control and Prevention website provides helpful tools including “ My Family Health Portrait.”

 Health Resources and Services Administration (HRSA)

 The Federal Government Source for Women's Health Information  



Legislation Links



1) thomas.loc.gov provides information on legislation including bill numbers, text, status, sponsors, etc.



2) USA.gov is the U.S. government's official web portal to all federal, state and local government web resources and services.

  • Learn about the Congress and the Legislative Process


Legislation of Interest

Contact your Senators, Representatives or the media about legislative issues.

House bill for source labeling of ingredients in medications.

Past Legislation on Gluten-free Labeling

The gluten-free definition for volunteer product labeling August 2013, effective August 2014. 

The Food Allergen Labeling and Consumer Protection Act of 2004, Title II of Senate Bill S.741 became law on August 2, 2004 with President George W. Bush’s signature. The following is a summary of the bill’s provisions related to Voluntary food labeling using the term “gluten-free”.


"Not later than two years after the date of enactment, the Secretary of Health and Human Services, in consultation with appropriate experts and stakeholders, shall issue a proposed rule to define, and permit use of, the term 'gluten-free' on the labeling of foods. Not later than four years after the date of enactment, the Secretary shall issue a rule to define, and permit use of, 'gluten-free' on the labeling of foods." Section 206.

Past CSA involvment with Gluten-Free Labeling

 Advocacy In Action

CSA is part of the following Advocacy Groups

Advocacy Efforts

National Organization for Rare Disorders (NORD)

Celiac disease and refractory celiac disease are currently listed as rare diseases. CSA actively supports the NORD position and letter linked below. 


Digestive Disease National Coalition (DDNC)

The Digestive Disease National Coalition (DDNC) is an advocacy organization comprised of the major national voluntary and professional societies concerned with digestive diseases. The DDNC focuses on improving public policy and increasing public awareness with respect to the many diseases of the digestive system. The DDNC was founded in 1978 and is based in Washington D.C.

DDNC Public Policy Forum Celiac Support Association members are encouraged to attend:

Sunday March 1 and Monday March 2, 2015

The 25th annual 2015 Digestive Disease National Coalition Public Policy Forum is the first weekend in March.  Some travel stipends are available.

Questions may be directed to the DDNC National Office, (202) 544-7497.



Alliance for a Stronger FDA
Alliance for a Stronger FDA
The Alliance for a Stronger FDA unites a broad group of patient groups, consumer advocates, biomedical research advocates health professionals and industry to work to increase FDA‘s appropriations. It is supported by leading public health advocates, including three former HHS Secretaries and seven FDA Commissioners.


Alliance Urges President-Elect Obama to Increase Funding for FDA
Broad Stakeholder Coalition Also Requests Speedy Appointment of New FDA Commissioner

Genetic Alliance
Genetic Alliance
The Genetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1000 conditions. The organization works to transform leadership in the genetics community to build capacity in advocacy organizations and to educate policymakers by leveraging the voices of individuals and families. Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
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