CSA San Diego Chapter #57
Connect with Our Twitter Account @SDCeliacSupport for Breaking News You Can Use for those with Celiac Disease/NCGS, and Upcoming GF Events in San Diego
CSA Chapter 57, Support Group Meetings in 2017
4 specific support group events and outings were planned for 2017 as we have in the past.
Sunday, August 13, 2017 at 12:00 pm - Annual CSA Picnic and Pool Party for Adults, Teens and Children at noon iat Village Park Rec Club #4 in Encinitas; more details to follow; RSVP to Michele Vargas at email@example.com
FUN ACTIVITIES FOR KIDS TOO, INCLUDING A PINATA!
- Sunday, November 5, 2017 Time TBD - Dining Out Event; Location TBD; RSVP to Michele Vargas at firstname.lastname@example.org
Interested in helping the support community for those with celiac disease and non-celiac gluten sensitivity in San Diego? Contact Michele Vargas at email@example.com to learn about Board Member openings for our chapter. We have openings for a Treasurer and Children's Group Leader.
Click here to join the non-profit Celiac Support Association (CSA) of San Diego Chapter 57 for 2017.
It's just $15/year per family (including dependents). To join our support group for those with celiac disease and non-celiac gluten sensitivity, simply come to one of our meetings with this form and your $15 payment (credit card, cash, or check) or use our secure online payment processing to become a member for the 2017 year. Feel free to email Michele Miller at firstname.lastname@example.org for more information.
The San Diego Chapter of CSA/USA was organized in 1993 to support those with celiac disease and other gluten related disorders. All are welcome and encouraged to attend our events.
Our non-profit CSA Support group meetings for those with gluten-related food restrictions are open to the public.
Feb. 25, 2017 - Thank you SO MUCH to Jamie Wolosin, MD, head of the Gastroenterology Department for Sharp Rees Steely, for graciously putting together such a brilliant, comprehensive presentation for our support group on Feb. 25, 2017. The meeting had fantastic attendance and yet he stayed to answer everyone's questions! We also greatly appreciated Dr. Wolosin letting us video tape the event, so we can share your presentation with others who could not attend. Look for more details on getting a free copy of that through the support group in March. Details will be posted on this website and sent out through member email.
Jamie Wolosin, MD Speaking About Celiac Disease to Our Support Group:
Exciting news for CSA Chapter 57 members: The legal paperwork is in process for our national and local support group to affiliate with an extremely well-respected national celiac organization. We will continue to operate as a chapter as we begin this exciting process. Your CSA Board unanimously voted to move forward with CSA and the merge, and an overwhelming majority of CSA voters across the country resoundingly supported this. We are all very excited to leverage our new connections to many of the best-known clinicians in this field in the world and our additional resources soon!
Of Special Interest to Parents of Children or Teens with Celiac Disease or
Non-Celiac Gluten Sensitivity
- If your children have been newly diagnosed with celiac disease, you might find these resources from Boston Children's Hospital's Celiac Program (a Harvard Medical School Hospital) very helpful:
- Nationally renowned celiac dietitian from Boston gives overview to kids on what to expect on a celiac-safe gluten-free diet: The Celiac Support Association Presents Celiac Dietitian Melinda Dennis’ Kids Chat
- Includes healthy gluten-free snacks, quizzes for kids on a gluten-free diet, tips to get a celiac-safe gluten-free pizza at a restaurant, ideas for what to say to other kids who ask why you can't eat gluten
- If you're a parent of a child with celiac disease or non-celiac gluten sensitivity and are having a hard time getting your child's 504 plan established, we can give you references to contacts who have helped other members in the past.
- If you'd like to take a more active role for children in the area please contact Michele Vargas
- See below for two studies on being gluten-free for medical reasons in college, and a prep guide for college.
- Learn how to cook gluten-free at the Curious Fork cooking classes. Their variety of gluten-free cooking related classes are perfect for children and teens and they offer them approximately every month or every other month.
- Contact Michele Vargas and we can setup a get together within a couple of weeks near your part of town with other families whose children have celiac disease or gluten-related disorders. We also have other parents you can connect with that are in town. Children, teens, and parents are always welcome at our support meetings, and sometimes we have special events and activities just for the kids.
News You Can Use
- May 24, 2017 - Dedicated gluten-free bakery 2Good2B is opening its new San Diego location in Rancho Bernardo this Friday, May 26. : Address: 11975 Bernardo Plaza Dr
- May 18, 2017 - Thank you / for April 1, 2017 Symposium & online slides: FODMAP diet, dental issue, children's resources, future potential treatments to the GF diet:
- April 26, 2017 - Unfortunate Phase 2 Celiac Drug Trial Results - "No Difference Between Latiglutenase and Placebo in Reducing Villous Atrophy or Improving Symptoms in Patients With Symptomatic Celiac Disease"
- April 25, 2017 - Gluten Free Ice Cream List from Verywell.com
- March 6, 2016 - Gluten Free Easter Candy List- https://www.verywell.com/gluten-free-easter-candy-562450?utm_campaign=list_celiacdisease&utm_content=20170303&utm_medium=email&utm_source=exp_nl&utm_term=list_celiacdisease
- March 5, 2017 -Surprising study out of Columbia University shows celiac patient symptoms correlate poorly with ongoing mucosal damage: http://www.healio.com/gastroenterology/malabsorption/news/online/%7Bd785cae1-e895-4a8d-a1f3-f255e069675f%7D/celiac-patient-symptoms-correlate-poorly-with-ongoing-mucosal-damage
- Feb. 15, 2017 - Study finds gluten-free diet poses greater risks of added exposure to arsenic and mercury
- Posted here Feb 2017 (study date Dec. 2016) - Eye Opening Gluten-Removed Beer Study from University of Chicago results (two of the active celiac patients in the study responded to the gluten-removed beer) -- http://aoac.publisher.ingentaconnect.com/content/aoac/jaoac/pre-prints/content-jaoacint.160184. Click the link on the page to download the full article.
- Verywell's 2017 Gluten-Free Valentine's Day Candy List (Updated Jan. 2017)
- Jan. 26, 2017 - Gluten Free Watchdog has a BIG new watchout for gluten-free oats - see what questions you should be asking for any oats you consume, even for purity protocol gluten-free oats. Also, a teff brand manufacturer is raising concerns with their high cross contamination levels.
- Jan. 12, 2017 - "Hidden" Celiac disease less common in US
- Jan.2, 2017 - Yoplait yogurt - If you like Yoplait Yogurt from General Mills, you might want to explore the Yoplait brand. Evidently it isn't labeled GF anymore. Below is the information from the person who wrote on the Celiac ListServ:
"We have been using Yoplait Original yogurt brand for years as they were, by phone and then by label, noted as gluten free. Well they have just changed their packaging for the originals and they are no longer labeled GF. And a call to the company, General Mills, led to the response that if it is not labeled GF it is not considered GF anymore due to ingredients or cross contamination. It makes me angry when companies do things like this. As with all our other foods, we are brand loyal and will begin to eliminate General Mills products from our home. Not that they care about one customer or seeming the celiac community."
- Jan. 1, 2016 - Interesting Work on Celiac Pill Going on in Seattle
- Dec. 16, 2016 - Article: Tests You Need After Your Celiac Diagnosis and Why You Should Follow Up on Your Celiac Diagnosis
- Dec. 13, 2016 - Surprising Results for Choosing Certified Gluten-Free Foods (Article)
- Dec. 5, 2016 - Did you know Jolly Ranchers are not considered gluten-free by Hershey? Click here for Hershey's current list of candies they consider gluten-free.
- Dec. 1, 2016 - Gluten Free Watchdog comment: Australian study on the gluten content of imported food
- Nov. 30 - New Free Program for Those Struggling with Celiac Disease, recommended by Lori Welstead, MS, RD, LDN, a dietitian from the University of Chicago School of Medicine:
- Program Title: POWER-C (Promotion of Optimal Well-being, Education and Regulation for Celiac Disease)
- Program Description: A FREE brand new, online, evidence-based program for people newly diagnosed and/or struggling with celiac disease. All North American adults diagnosed with celiac disease (blood test and/or biopsy) are eligible to participate. POWER-C contains 4 modules to be completed bi-weekly over the course of 8 weeks. For more information or to sign up - please email Lori Welstead, MS, RD, LDN at email@example.com<mailto:firstname.lastname@example.org> and indicate that you are interested in the POWER-C study.
- Nov. 22, 2016- Allergic Living’s U.S. Colleges Directory: Comparing Allergy and Gluten-Free Policies
- Pediatric Celiac Disease Updates - Summary "in english" of new medical updates from Jess Madden, MD, a member of the NA Society for the Study of Celiac Disease
- Shelley Case, RDN, just published her new book, Gluten Free: The Definitive Resource Guide. Click here to purchase a copy from her.
- Nov. 17, 2016 - Celiac Dietitian, Tricia Thompson, RDN just posted a new video on why similar part per million gluten levels in grain foods versus OTC meds and spices are not the same in terms of the amount of gluten consumed. The free 5 minute video is available at https://www.glutenfreewatchdog.org/news/video-putting-gluten-contamination-levels-into-context/
- Sept. 2017 - Statistics and quotes from the Spring 2016 New England Celiac Organization College Study reveal the difficult time college students with celiac disease are facing. The survey documented the dietary, social and educational issues faced by college students with celiac disease or significant gluten intolerance. Following the survey, the nonprofit created this Gluten Free College Survival Guide.
- First Published in July 22, 2016 - Symptomatic suspected gluten exposure is common among patients with coeliac disease on a gluten-free diet; Learn how often those in the study felt they were glutened inadvertently, why, and how quickly and how long it affected them.
Some of the San Diego Area Gluten-Free Restaurants & Bakeries
Some Dining Out Tips:
-Check to make sure any restaurant is using purity protocol oats, not just oats that are certified gluten-free.
-Check to make sure the restaurant's flours are at least labeled gluten-free, since cross-contamination can be a problem with many naturally occurring gluten-free grain flours, including rice flour
- You may choose to be especially careful at pizza establishments serving "gluten-free" pizza - some are not as safe as others (see slide below, courtesy of Melinda Dennis, MS, RDN). The answer is ALL of these steps are needed to keep gluten-free pizza safe.
- 2Good2B in Encinitas, CA is a dedicated gluten-free, corn-free, soy-free bakery and restaurant. They are also well known for their exquisite custom cakes and offer catering options as well.
- Curious Fork in Del Mar, CA. They have wonderful gluten-free food and pastries, plus gluten-free baking and gf cooking classes for beginner, intermediate, and expert cooks.
- Healthy Creations in Encinitas, CA. They offer delicious, organic, gluten-free take-and-make meals, and a terrific bakery and in-house menu.
- Starry Lane Bakery in Santee, CA is a dedicated facility, free of all of the top 10 food allergens, including; gluten, soy, dairy, eggs, tree nuts, and peanuts. See their website for holiday food items and recipes.
- You may want to try saving time this busy holiday season with DoorDash. This is an app which can be downloaded on your phone or accessed from the web. The service will make deliveries from several of the locations above for a small fee, and in some cases the delivery fee is free. They let you schedule your delivery time or choose for the food to be delivered asap and you can track where your driver is at.
Download the 10-inch gluten-free spice bundt cake recipe (from Gluten-Free & More magazine) from the Feb. 27, 2016 CSA Chapter meeting.
Watch Our Free Videos from the 2015 CSA Chapter 57: San Diego/National CSA Hosted Thriving Gluten Free Conference, featuring Melinda Dennis, MS, RDN and Anthony Colatrella, MD:
Other Past CSA Events in San Diego...
There's no replacing the personal contact that you get from a support group with other members who have celiac disease, non celiac gluten sensitivity.
Chapter meetings with yummy gf food, GF Expo event in Feb. 2016, Dr. Newton educational lecture, Dr. Crowe educational lecture, learning new labeling laws with registered dietitians including Kelli Gray Meisner, specializing in gluten-free nutrition, Thriving Gluten-Free Seminar featuring Melinda Dennis, MS, RDN and Anthony Colatrella, MD, Kids Gluten-Free Halloween Party, Rosio Hernandez, MS, RD, CNSC talks with children who eat gluten-free, EA Stewart RD educational talks with children, Annual Gluten-Free Pool Party/ Picnic, GF travel tips, GF Bread and Cake Tasting Event, GF restaurant sampling event, Shelley Case, RD lecture, Annual Thanksgiving Catered Event, Dining Out at Mountain Mikes, the Trails Eatery, 2Good2B, Healthy Creations, plus catering from Potapas, Deanna's Gluten-Free baked goods and more!
Directions to CSA San Diego Chapter Meetings at Rady Children's Hospital:
Where: The Rady Children's Medical Office Building is at 3030 Children's Way, San Diego, 92123. Dining Rooms A-B-C at Rady's are reserved for most of our meetings.
The parking structure directly across the street has free parking on Saturdays.
- Park on the top level of the North Parking Structure on Children's Way (the same one that we've always used).
- Cross the footbridge to Entrance #5 and go straight through two sets of automatic glass doors.
- Straight ahead is the Hahn Center. Use the Cafe doors, and walk through the cafe to the meeting rooms on the right side of the hallway.
- The meeting is in a conference room off of the Cafe (enter through the Cafe doors).
- Rady Children's Hospital Map Link
When other locations are specified, addresses and directions will be given with the announcement of the meeting.
Who comes: Anyone interested in information and support for celiac disease, dermatitis herpetiformis, or gluten sensitivity. There are newly diagnosed as well as long-term diagnosed persons at every meeting. Newcomers are especially welcome and encouraged to come.
Meeting formats: The meetings may include guest speakers, discussion groups, potlucks, and more.